Saturday, December 2, 2017

Chemo, then Chemo Again, then... No Chemo

Chemo
Okay! So, I had chemo a few weeks ago, and my dear friend Lisa was my chemo buddy AGAIN. That's right, she signed up twice, because that is how she rolls. She's the one who, when I first told her that I have cancer, said, "We are going to get through this. Together." That's pretty great, no? Love her! Thank you, Lisa.

She also cracks me up, and did so when, after picking me up, she said, "I was looking at last week's picture with Chemo Buddy Josh and was like, pink wigs! Way to raise the bar here, Josh!" Ha ha. But seriously this is not a Chemo Buddy competition. 😳



So pretty. #chemochic


I must let you know, chemo is tedious. Not just the infusion, because to me that actually feels a little like taking action and I like it, but having it once a week is just a really boring cycle. If you are not waiting for chemo, or having an infusion, or resting, then-- woo hoo Monday through Thursday feels pretty normal! but you still must avoid super germy people or at least apply antibacterial goop on the regular and assessing your day's activities with energy preservation in mind... I don't mean to complain but I just want to be clear here that this is... tedious. Which is why having Chemo Buddies is really amazing, because it allows me to have some social life woven in between. 

Chemo
After Lisa came my mom and my dad as Chemo Buddies... which was just incredibly special. I loved having them both here, I loved showing them around, showing them what my life is like. It was my dad's first DC trip, and we got to enjoy some monuments, a Smithsonian (Natural History Museum, naturally), and delicious Japanese (Sushi Taro-- I had udon noodles, though, since I cannot have raw fish right now). And then we got to have a very special Thanksgiving courtesy of the Vito's. There was a lot of love and gratitude going around, and it was difficult to bring them to the airport. Their absence was noticeable during the following days. Luckily, the weekend was capped with a Christmas tree and adorable Christmas hugs from our nephew. And egg nog (don't judge, I love that stuff.) 

Yes. I do look like them. 


... and then No Chemo. 
I mean, I know that I said that chemo was tedious, but I did not mean that I don't want it...
This past week, my body decided NOPE. Really, my neutrophils decided nope-- they are depleted, which was extra disappointing since it was a week and a half since my last infusion plus I have been getting the neupogen booster (they were at .820, in case you have been following along). Essentially, my body is fighting off germs so this is the result. I am pretty disappointed, though I know that delays are to be expected. I don't know what else to say except that it sucks, and that's life. (Please note that if you say that to me, it is different... so please do not. :) 
Other than delaying treatment and pushing it all back a week, what it means is that I must be extra careful for a few days while they are low (so this weekend). It is important because if I do get an infection, which is mostly monitored by me taking my temp at least twice a day, and if it is 100.5 or above I have to go to Urgent Care or the ER. I am doing what I can to avoid that. 

It is all fine, and I am feeling mostly fine-- just a little worn out. Possibly a tad frustrated. Thanks to all of the friends and loved ones who have been reaching out and sending happy mental health messages. Hugs!



2 comments:

  1. Trisha,You are a brilliant, beautiful young woman! Keep smiling. I keep you in my prayers and my πŸ’“!
    Keep up with your positive outlook.
    🐾🐾🐻. (bear hugs) Lynette

    ReplyDelete
  2. Hi! Dad says it's a go for this week. I will be with you in Spirit!!!
    Go Girl Go!!

    ReplyDelete

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